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smilingheart1's avatar

Help me understand bipolar disorder? PLEASE READ DETAILS?

Asked by smilingheart1 (6439points) September 29th, 2011

There is much in books and on the web about bipolar disorder. What I am asking of you is that if you have lived in this environment either as a family member or the person with the condition, would you share your EXPERIENCES. I mean, how often does it take to cycle between the polarities? Treatments? Cooperativeness of the patient? How do you cope overall….Whatever you choose to share.

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9 Answers

JLeslie's avatar

I don’t think you can generalize about how long a manic or a deoressive stage will last, it is so individual, depends on how fast they seek treatment, if they find the right drug off the bat, and dose, etc. Living with someone who is manic is pretty difficult. They tend to be reckless, oversexualized, not sleeping, etc. Many people enjoy the phase, at least for a while, because they feel full of energy, and society tends to reward people wo need less sleep and have tons of energy.

Being depressed, like any depressions, can disrupt sleep, the persn doesn’t enjoy anyting, it cam drag the entire family down. They cam be suicidal, feeling no hope they will ever be better.

Cooperativeness really depends the patient. Some want to feel better, normal, especially those who are depressed. Some have side effects from medications and hate being medicated. Sometimes they respond well to medication, and then once they feel better for a while decide to stop takingntheir meds, because they feel better, and then they might start sliding backwards.

I’ll forward your question to some jellies who are bipolar.

Hawaii_Jake's avatar

I’m bipolar. I was diagnosed 10 years ago. It’s difficult to describe how long the mania and the depression last, because I’ve been stable on medication for quite a long time. Perhaps that’s what I can add to the conversation. Medication works. It’s often a mixture of a few different medications that help with treatment, and it’s often difficult to find the right mixture.

I’m lucky. My bipolar readily responds to medication, so it was not as difficult as I know it is for some to find the right combination. It’s definitely better being stable than it is at either end of the spectrum of mania/depressed.

I’m also lucky. I grew up with a sister who’s a psychiatric nurse, so I heard many stories of the problems with patients who didn’t take their medications as prescribed. I often heard stories of success and failure of treatment based on the patient’s cooperation with the doctors. Personally, I’m an advocate for adherence to medical treatment.

I have side-effects to the medication, but I talk openly and honestly to my caregivers about those.

I am not going to be very open to sharing my experiences before I was stable, because many of those memories are private and painful.

In closing let me add that the patient can do a few things that help the treatment enormously:
1. exercise
2. therapy
3. honesty with caregivers.
4. adhere to one’s medication regimen

GracieT's avatar

I agree with @JLeslie. Bipolar is a mental health disease, therefore it is as different as the people who have it. I am Bipolar, but I have Bipolar II, depressive type. In my depressive periods, which can be often, I can feel that I can’t get anything right, including my diseases. I’m Bipolar, but not what people think of as Bipolar. I had Mono, but I only missed one day of school, (day before Christmas break!) and was all better when school started again. Thinking of things like this can get me started in a depressive cycle, and I have to watch my thinking. (I even tell myself that I can’t even do mania correctly!) I am fortunate enough to have two WONDERFUL doctors and I credit them both for keeping me alive. One is my therapist, and one is my Physical MedicIne and Rehabilitation doctor. He is the one who put me on two anti-seziure medicines that also work as mood stabilizers. For a Bipolar epileptic, that was BRILLIANT. I also have to watch it because I was in a three or four year mania episode when I had the injury and I called myself the “eternal optimist” and wasn’t kidding. Then I start to think of how much I have to be thankful about and I can usually get out of my depression. That’s why I consider my doctors brilliant. Just two years ago I would’t have been able to get out of the spiral and may even start thinking of running my car into a tree (If I was really bad I’d think I’d probably screw that up
also.). Luckily I still have some mania. Usually exhibits in my shopping sprees or cleaning EVERYTHING in sight. Times like that I start to think that life is wonderful and everybody is my friend and I’m God’s gift to my family… I LOVE mania! Luckily I’m surrounded by people that know me well enough to recognize when I’m with manic or depressed. They convinced me to check myself into the hospital twice. They probably saved my life!

wundayatta's avatar

Cycling: You can cycle a few times a day to once every other year. I was hypomanic for at least a year—maybe two—before things started getting bad. Then I had cycles that lasted a month, and finally, in the last weeks before I was diagnosed, I was “mixed.” All over the place. Manic and depressed at the same time. I wasn’t really cycling, just purely in misery.

When I got diagnosed, they started me on Lithium, and things continued to get worse. I was using love as a means to try to make myself feel better, but that was pretty problematic since this society frowns on cheaters. My mood would go up and down with each affair. My affairs were very intense. So my moods swung drastically. Even when I was high, I was guilty and worried and anxious, and when the relationship tanked (I always made sure it did), I would become suicidal. It was a lot of pain, but it was intense and at least I felt like I was living and that things mattered. I felt like I was trying to save my life.

Treatments: Meds, therapy, group support, self-education. Plus hundreds of other things. Search for bipolar on fluther. You’ll find a lot. But let me tell you a little about the role of each and some common misconceptions.

What is the significance of brain chemistry? Bipolar is a brain chemistry disorder. There are different ways to treat brain chemistry. Meds help by working on the brain chemistry in order to change the way the chemistry work and thereby change the patterns in the brain, thus changing thought patterns. Therapy teaches us to think differently, and this also changes thinking patterns, thus changing brain chemistry. There are other techniques such ect (electro-convulsive therapy) and a therapy that uses magnetism. Both can be very effective. They work to change thought patterns directly, thus also changing brain chemistry. Electro-shock is usually used when meds and therapy don’t work. Magnetic therapy is new, and while effective, is not all that common yet. It may work better than meds or therapy, but people still don’t use it until everything else has been tried.

Meds: Lithium is the gold standard. If you aren’t started on Lithium, you need to find out why. A lot of modern shrinks think they know better and they use modern drugs first, and I’m not sure they get it right as quickly as shrinks that start with Lithium. It usually takes a while to get the meds right. Most drugs won’t kick in until at least a month has passed. I know people who can go through twenty or more different drug combinations before they find something that works. As you might imagine, that can take years. You have to be patient.

There are 276 different combinations of bipolar drug treatments. As you can imagine, that can take a while to go through. Many patients give up long before they’ve given it a chance. Try not to do that. Set your expectations low. It can take a while.

Therapy: meds aren’t enough. Therapy is a good addition. Shrinks and therapists and social workers and a variety of other people are licensed to treat bipolar. You probably won’t find the right therapist the first time, either. Keep on trying. Therapists are like drugs. They don’t all work for you. Identify what style therapy you want. See if you can find someone who is like that. Often you have no choice. You have to take what your insurance pays for, but try to get alternatives. Don’t give up.

Also, join a support group. “DBSA”: www.dbsa.org runs groups across the nation and their website has a directory. There are other mental health organizations that also have support groups. Additionally, there are online support groups. As you see here, there is nothing like talking to people with the condition to get information you can not get anywhere else.

“Therapy dos and don’ts:* Whoever you talk to, it is useless if you aren’t honest. Remember, the therapist works for you. It’s not the other way around. If they give you shit, fire them. You should never be afraid to tell them you drink or do drugs or self-medicate in other ways. One of the members of my group last night was saying she thought her therapist would fire her if she mentioned her drinking. This was because she was “fired” from CBT (cognitive behavioral therapy) because it wasn’t right for her. She took that personally. She shouldn’t have because CBT does not work for certain people—particularly those who are very self-aware. Mindfulness works better, in general, for those who are self-aware and have trouble fooling themselves.

Educate yourself about CBT and mindfulness therapies. Educate yourself about all the different therapies you can find. You have to do your research. There are many sites out there with plenty of information about bipolar and about therapy. Find therapies that you think might work for you. Don’t waste time with the rest.

Coping techniques: There are many coping techniques that people will talk about. Exercise. Get sleep. Do not stay up all night. Tear up your credit cards if you have spending issues. If you have sex and love issues, beating yourself up about them does not help. So-called hyper-sexuality is a form of self-medication, like drinking and smoking pot. It is common among bipolar people. Sexual profligacy is also a hidden symptom. Few are willing to talk about it for obvious reasons. Sex and alcohol are coping techniques, but are not recommended. They create as many problems as they solve.

Volunteer. Help others. Keep yourself busy. Get involved in the arts. Meditate. Do yoga. These are some of the many coping techniques. They work. Like all things, they take time.

Suicide: Bipolar is a very dangerous condition. 20% don’t survive. Suicide is the means of death.

Having said that, I have found it very helpful to realize that suicide is absurd. Ridiculous. Funny. I don’t think it is painless, as the MASH theme suggests.

No one wants to die. We all want the pain to stop. But we do not want_ to die. The problem is that with bipolar, if left untreated, it seems like the pain will never end, and it is the worst pain most of us have ever experienced. Most, given a choice, would rather be physically tortured than be depressed. In fact, that’s why so many engage in self-harm. Physical pain actually relieves mental pain.

If, somehow, we can feel some hope, we will hang around to see if something will make us feel better. My shrink said that he advises his patients to not make any big decisions (such as divorce, quitting jobs or suicide) for three months. You just aren’t thinking properly when you’re depressed and if you get some relief, you will probably reconsider. So wait three months to see if anything will work before you make any decisions.

When I was diagnosed, I was ready for divorce, job quitting, leaving my family and ending up in the gutter. I hoped that one of my lovers would take me in, but I didn’t expect that. I fully thought I only deserved to be in a gutter full of piss and rotten fish guts until I died. I didn’t even think I deserved to end it soon. I still think that’s where I should be, even if I am one hundred times better, but that’s just a…. I don’t know.

When I write about this stuff, it starts to come back, like a kind of ptsd and then it gets to the point where I start falling back into it. I can’t do this much longer…. I’m feeling really sad… maybe it’s just for the pain I was in and others are in. I wish I could do something. I know now it is possible to get out. There is hope. I can help. But I can’t be with everyone. I love you all. Yes, it’s not personal, but I feel for you and… I wish I could help.

In any case, one night I was talking to a friend who was depressed. She was the only person I knew at the time who understood. I spoke to her because I had had enough. I was ready to go, but I didn’t think I could do it alone. I knew she was just about ready to go, too, so I thought if we did it together, we could do it.

So we had to figure out how to do it. We started brainstorming. Well, I don’t know if people who haven’t been here can understand, but brainstorming about suicide is hilarious! It’s totally absurd to be trying to come up with ways to kill yourself. We started tossing ideas around, and there seemed to be reasons to reject them all. Some weren’t doable—couldn’t pull trigger or couldn’t step off the edge of the skyscraper. Some were too scary. Some were inartistic. Every once in a while, an idea would seem totally ridiculous and we’d laugh. Gradually, all the ideas became absurd and we were laughing more and more, and then we were laughing so hard, we couldn’t breathe. And I serious mean couldn’t breathe. To the point of blackout, almost. Ironic, wouldn’t it have been, had we actually died of laughter.

So trying to figure out how to kill myself was the funniest thing I’ve ever experienced in my life. Laughter is so healing. My friend and I saved each other’s lives that night by trying to commit suicide. I should patent it, don’t you think? I could run suicide workshops. Gallows humor, to the nth degree.

Ok. I had a point somewhere in all that. Oh. I guess we shouldn’t be afraid of suicide talk. We certainly shouldn’t steer away from it. I think most people are afraid to deal with it for any number of reasons. But it doesn’t help to avoid it. I think we can’t afford to be afraid of it. I also think that what most people do doesn’t help too much. Guilt-tripping us may work for people with children, but to tell folks that they will hurt others isn’t very sympathetic and makes us feel even more misunderstood. We are almost never doing this to hurt others, and if we are, it is only because we didn’t get the help we needed earlier on. Anger is a weapon against pain, although in this case it is self-destructive. Guild tripping people may work, but it isn’t a good way to deal with the problem.

So talk about it. Be sympathetic. Don’t try to argue us out of it. Yes, express your concern and care and love, especially love, but don’t try to make us believe any loves us. It’s not possible to see. Be real, for god’s sake! Understand that suicide is about pain. We don’t want to feel pain any more, and you wouldn’t either if you knew what it was like. Trust me. We need hope and we need help. We need love. Help us get help. Let us know you will help. ASAP. Get us to a shrink. Talk to us. Love us. Help us feel connected to the universe, the world, to you. Don’t fake it either. Just be honest.

Sorry for writing so much. I’m sure I could write a damn book about it. Maybe I will one day, but I doubt it. I don’t have any stick-to-it-iveness. But I hope this has been helpful to someone, even if you only read the first few paragraphs. Good luck. There is help is you want. Oh yeah. The support groups are for family members, too.

abysmalbeauty's avatar

I had a great conversation this morning with a Dr about bipolar, I wish I could recant the whole thing because his perspective probably makes more sense to someone who isn’t suffering from it then a first hand account, it really seems like madness sometimes.

I don’t know if its just me but i have a feeling that its not and its more related to the disorder but there seems to be a lot of self centered thoughts. Your thoughts get stuck in your head, you get stuck in your head and its like an infinite loop, really annoying. And everything in some way has to do with you, the weather changes with your moods (ie when i’m sad it rains…) You feel for everyone like truly feel for them, its as if another mans suffering is yours first hand (which is exhausting) sometimes I can t even watch movies because I get so depressed. I have often wondered if my memories are real or a dream or a movie…..

On the flip side, mania is awesome sometimes. The world is brighter and bolder and colorful and beautiful and perfect and you are one with nature and its very zen like. You have more energy then 3 people need, you are talented and creative and fun, everyone wants to be your friend or you want to be everyone’s friend and you can do anything because you are “invincible”. But it can get to be too much and then its paranoia and can lead to delusions, hallucinations, voices etc. Excessive indulgence becomes damaging whether its spending, drinking, eating, other things….

For me one of the biggest issues is that I am able to recognize in most people what they need if they need something, but I don’t share myself at all. I wear a different hat for each group of people that I know and none of them are me. I don’t tell anyone anything about me including what I need which makes it hard to get better. Most of the time I just wish there was someone to talk to, to the point that I will walk in circles just about banging my head on the walls because all i want to do is talk, but even when I get the opportunity I can’t… The words wont come out of my head to my mouth so I just put on another hat to be who I think they want me to be and keep on suffering.

I cant tell you much about medication, I haven’t been on any in a while. I’m starting a new one soon, Ill let you know how it goes.

smilingheart1's avatar

@Hawaii_Jake @GracieT @wundayatta @abysmalbeauty
Kindest thanks to each of you who have so honestly and transparently communicated from your depths. I am touched ever more deeply about this thing we share called the human condition and feel closer to each one of you. Your knowledge and oysters of experience have produced pearls in you from which others are benefiting! Thank you for sharing! While I am not myself bipolar, deep self-worth depression pervaded until I was well into my 30’s. I did have a new start after that. How I was able to climb out of that deep old hole is for sharing another day as well as my reason for asking you about the condition. It is new relationship that I have become close to which has me reaching out. I will revisit this thread often.

@JLeslie, @everephebe
Thanks a million for foundations of learning and your references for help. This is a great community you have going here!

wundayatta's avatar

Ah @abysmalbeauty. I feel for you. I would encourage you to find others with the disorder to talk to. There is nothing so easy as to talk to people like us about this. We are the only ones who have enough experience to get it. The doctors don’t really know even if they have studied it all their lives. They may know it inside and out, clinically, but unless they have been there, they can’t truly understand the feelings and that hurts their ability to be helpful. Too many start to think they know us better than we know ourselves.

I also wanted to acknowledge your ability to feel the needs of others. I don’t know if I’ve ever heard anyone else talk about that. I know I’ve been reluctant to talk about it because it sounds so presumptuous, but I know exactly what you’re talking about. I know people who never have said a word to me before. I can tell things after I get very little information. Things like whether they are Catholic because, of all things, their interest in studying sex.

But also I can tell who has something going on in the mental health area. Particularly if they are bipolar. Or at least I think I can tell. I don’t always ask because it’s generally inappropriate to ask, but when I have, I’ve always been right. And my level of empathy has shot up since I’ve been sick. I can feel other people’s feelings so much more deeply now. Too deeply. I have to shut myself off many times, because it can drag me down.

Group meetings can send me soaring or drag me down instantly, depending on how people are feeling. Mania and depression are catching. So, while group meetings are very healing, they can also be dangerous. And then there’s the desire for intensity—preferably good, but if it can’t be good, then depression is better than staying stable. The only people I’ve ever met who that makes sense to are bipolar folks. Even monopolar people don’t quite get it. Schizophrenics understand, though. It’s all very weird. But I’m very glad I’ve survived so far. It has taught me so much.

windimera's avatar

Well I am not going to share my entire story cause it upsets me. However, I can tell you how to cope with it. Don’t run out of your medicine. Always see your doctor every month. Never stop your medicine unless a doctor or nurse tells you to. Be completely honest with doctor about everything. How the medicine is helping or not helping. Even keep a diary of how you feel every day so you can take it to your doctors and therapist for them to look over. If you find a medicine is not working for you, making you worse, or perhaps too much as in feelings of sleepiness…call your doctors office for directions on what to do. Never tell anyone that you take medications outside the family. Some people will rob you for them. Listen to your body. When your tired sleep. When your hungry eat. Try to eat healthier. But if you find yourself sleeping 16–20 hours per day. Check yourself into the hospital cause ovasiously the medications is not working. If your a woman make sure your Gyno appointments are kept. Hormonal imbalances suck..they suck even more when your not regular. This goes for the guys too. You all keep up your body check ups to. Now as dealing with it….well a sense maturity goes a long ways but no one can possibly get you ready for bipolar disorder. I was 20 when I started have anxiety, depression, and panic attacks…later it turned into bipolar or it had been…i think maybe it was bipolar since I was 20 years old. but whatever…I freaked out at first… didn’t know what was happening to myself, thought i was going crazy. But after the medication calms you down and you have had a while to think it through you realise you have a medical problem no different than a heart problem and you must take medication for it. You may struggle with that thought but its the same either way. you must take meds if you want to have any kind of life. same as the heart patient. they take there meds cause they want to live and so we must as well.Over the years you will make mistakes that is normal for everyone but bipolar people seem to go over the mark, like sleeping around on your partner’s back cause you feel confused and unable to process logical thinking. But when you finally get on the right meds and you have a plan then you can have the kind of life you want. You might not be rich or famous but you will have a life worth living. As far as the mistakes you have made in your life well…Don’t judge me on my past cause I don’t live there anymore. And thanks to the Great Divine that I Don’t…Hope this helps in some way and keeps you from making the great many mistake that I have. Cheers!!!

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