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AnonymousWoman's avatar

Do you mind telling me everything you know about Non-Hodgkin's Lymphoma? If you or anyone you know has had it, please share your stories.

Asked by AnonymousWoman (6531points) April 7th, 2013

That’s what my Mom has, so it’s important to me.

Thank you in advance!

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5 Answers

janbb's avatar

A niece was treated for it when she was in her 20s. Don’t know much about it but she is now in her 40s. She had a treatment that could possibly have rendered her infertile but went on to have three healthy children.

Judi's avatar

My sisters best friend was diagnosed 5 years ago. She is 57. She decided not to get treatment and live her life to the fullest. She and my sister just got back from the trip of a lifetime traveling to Peru and Argentina.
The only treatment she has is that she drinks this edible Green Tea
every day and the lymphoma is still there but hasn’t grown a bit in 5 years.
My father in law got Lymphoma and tried to fight it but died in six weeks.
It’s a disease that works differently in different people.

Earthgirl's avatar

I found this guide from the Lymphoma.org website.
It is very complete and written in easy to understand language. Sometimes the medical terms you will be hearing are confusing and there are so many tests.. This booklet really explains a lot. It can be a little intimidating to someone who isn’t familiar with it all and doesn’t understand the medical terms.

Everything depends on so many variables so even if I had the same exact cancer as your Mom I would hesitate to relate my experience to hers. The one thing I can understand is what it feels like to have cancer (I had Hodgkins Lymphoma), and to undergo treatment for it. Some of the chemo drugs I had are still in use today but there are also a lot more advanced treatments that have only come about since 1990. With relapses they now sometimes use stem cell treatments. I had a relapse a few years after my initial remission but that treatment wasn’t available at the time so I underwent localized radiation and a followup course of chemotherapy. While I was having the treatment I was able to continue working full time. I am now completely cured.

Since you are so young I am assuming you Mom is not very old. Her prognosis depends on many variables which I’m sure your doctor will go over with you, but being 45 or younger gives her a better chance of recovery. Don’t be afraid to ask lots of questions from the doctor. Sometimes you have to really be prepared with your questions because they are often in a big hurry! The booklet gives you a good list of possible questions to ask.

I cannot be more specific because I think you need to find out more from her doctor about exactly what type of lymphoma she has and what stage it is in. Find out what treatment they plan on giving her as there are a lot of different treatments available for this type of cancer.

Your doctor is the best source of information that you could ever get! Your Mom needs to have confidence in the doctor and if you don’t, don’t be afraid to get a second opinion for your Mom, It’s important to have a positive outlook. Make sure your Mom eats healthy and takes good care of herself. Try to keep her spirits up in this difficult time.

As I said before, please PM me if you want and I will try to help you in any way I can. If she has to have chemotherapy I know what that’s like and I can maybe reassure you a little. It’s difficult but there are little things that might make it more bearable for her. My thoughts and prayers are with you.

Adirondackwannabe's avatar

@AnonymousWoman I don’t have much experience with this but I am sending you my thoughts and prayers. Good luck lady. And good luck to your mother.

nofurbelowsbatgirl's avatar

My insurance adjuster had this at the age of 41. He is now 65. Other than that I really don’t know much about it. I think catching it early may be the key, but I don’t really know.

Good luck to your mother. I will pray for her.

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