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ducky_dnl's avatar

What's the survival rate of Multiple Myeloma in a 17 year old girl?

Asked by ducky_dnl (5371 points ) February 10th, 2010

What’s the survival rate of Mutiple Myeloma in a 17 year old girl? Are my chances of living higher, since I’m young and in “okay” shape.

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14 Answers

lucillelucillelucille's avatar

Haven’t you talked to your doctor?You need to.Also get some books on the subject and read,read ,read!Maybe contact some groups in your area that deal with kind of disease.Start by talking to your doctor.

grumpyfish's avatar

You really should talk with your oncologist about it. It’ll depend on what stage you’re in, etc.

In general, younger, otherwise healthy patients are better able to handle treatment regiments.

I assume you’ve been diagnosed and this isn’t a self-diagnosis?

ducky_dnl's avatar

No, it’s not self diagnosed. :/

Wish it was though.

grumpyfish's avatar

@ducky_dnl I doubted it, since MM would be really difficult to self diagnose.

I’m hoping for the best.

shilolo's avatar

I doubt you are going to get much in the way of definitive information (sorry). Multiple myeloma is rare enough in general, but myeloma in an adolescent is exceedingly rare. Therefore, there just aren’t enough patients to generalize. That said, adolescents with bone marrow disorders tend to have a much better survival overall, especially in response to chemotherapy or bone marrow transplantation owing to being “in better shape” as you suspect. My recommendation would be to seek out a major medical center/cancer hospital like MD Anderson, Fred Hutchinson, Dana Farber or Sloan-Kettering. They’ll at least have more expertise with this than smaller community hospitals.

ethomas65's avatar

I would recommend you seek professional help like from either Cancer Treatment Centers of America in Tulsa, OK after having a local oncologist confirn you have that. Dr’s really shouldn’t tell people how long they have to live. Have it confirmed and seek treatment at Cancer Treatment Center of America in Tulsa OK or MD Anderson in Houston TX or Johs Hopkins in Baltimore

Dr_Dredd's avatar

I second @shilolo‘s recommendation of Sloan-Kettering. I did some of my training there, and the care was excellent. Lots of new research going on there, too, if you wanted to be in a clinical trial.

Best of luck to you.

augustlan's avatar

Good luck to you!

Simone_De_Beauvoir's avatar

As far as I know, you never get rid of it and you treat it as long as you live but the cancer might go into remission. My patients with MM have lived for many many years but you should call my workplace, the American Cancer Society, 1–800-227–2345 (24/7 LIVE with a cancer specialist that knows the answer to your question).

jwilliams7777's avatar

I was diagnosed with MM over 4 years ago when I was 26. I have been treated by several of the top MM Docs. As mentioned before, there are not really enough young patients to answer your question very well, but they have all told me logic would agree that being young can only help. I don’t know where you live, but Dr. Barlogie at the University of Arkansas is probably considered the “best” for MM, although from my experience, I thought he was too aggressive, and did a lot of unnecessary tests. Along with Barlogie, Dr. Durie at Ceder-Siani in LA is the other “top” Doc, although he only consults these days, but the head doc there Dr. Vescio is also one of the best, as well as a really nice guy. Johns Hopkins in Baltimore is also another top place, Dr. Burello is probably the best there, he was my favorite oncologist so far (put me into remission without making me too sick). Other places that are great for MM (but I have not been to) are MD Anderson in Houston TX and Dana Farber in Boston MA—- there are a few others—Go to a specialist, I have met a lot of people with MM who get some really weird treatments from their local oncologists. Let me know if you would like any advice, or just want to talk---stanky_williams@hotmail.com

jwilliams7777's avatar

I found a post on a MM forum talking about a study showing people under 50 having better survival rates—one of the few actual studies I have seen—I would guess that if being under 50 increases survival rates then I would think that being under 30 or wow in your care under 20 would help even more——check it out——plus this is a really good forum for MM—here is the link: http://www.myelomaforums.com/forums/viewtopic.php?f=37&t=249

MichaelAndrews's avatar

A study by the European Cancer Registry shows that one-third of multiple myeloma patients lived longer than five years. ..

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