What else should I get checked out for regarding my health?

Oh man, this sounds so familiar to me. About a year ago, I was having all sorts of ridiculous things going on. I was getting dizzy (like vertigo) spontaneously. I would be sitting at my desk at work, and all of a sudden ..voom!.. the room would be spinning, and I’d feel like I was going to fall out of my chair. After these events, I’d have symptoms of nausea and general yuckiness for hours, and occasionally days afterward (depending on how severe the vertigo was). I’d also get these headaches that weren’t so much pain, as just the feeling of a vice on my head. My mom and I refer to it as “tight head” feeling. I’d hang upside down from my bed, because that seemed to make me feel better. I also had weird chest feelings; I was convinced I was having a heart attack.

I went to my regular doctor and had an EKG.. normal.
She sent me to a cardiologist where I had an Echo-cardiogram.. normal.
I had my blood work done to test for abnormalities.. other than my usual sort-of low sodium (which I’m well aware of) – normal.
My doctor sent me to a neurologist where I had an MRI… normal (and now I have a nifty CD of my brain!)
I also went to an ear, nose and throat specialist.. normal.

The ear nose and throat specialist told me something very important: he said that he sees people like me everyday, with the same symptoms (more or less), who have had every test in the book done to them. The answer is always the same: no one knows why this happens.

After all this, I developed my own hypothesis: hormones. I’m a woman, and my mom experienced similar things at my age (29), and my aunt did as well. After all these tests, I went on hormonal birth control. I’ve felt great ever since.

I’m not saying that this is what is happening with you, or really even giving you any suggestions for tests. I’m also not advertising birth control, just saying that it has seemed to help me. I hope I’m not discouraging you, either. But I just want you know that I know what you’re going through and I sympathize. (I’m thinking you’re a woman, but even if you’re not, I sympathize… this stuff is crazy). Just try to stay as calm as possible, and not to worry. The worrying makes it so much worse (I would be up all night sobbing into my pillow because I was convinced I was going to die). Good luck!

My mom seriously thinks it’s bc but I was off it for a month and still feeling weird! But then again I’ve been on them for years and no issues. Could be other hormones but so annoying! It’s very comforting to know I’m not the only one though. But your symptoms sound similar to mine!

Sometimes I find people on a forum with similar symptoms and can’t figure it out either. It’s probably unrelated but I also have weird points of pain like voodoo doll symptoms. I want to say it’s fibromyalgia but not severe. I’m so tired of going to doctors though. Any idea about that? LOL

And yes sometimes I am so frustrated because it feels like dying.

I was tired of the doctors, too. What really made me stop and think was hearing my mom tell me she had similar things, and my aunt. And the two of them thought they remembered their mother having similar things. And now my cousin is having some of this stuff, too (also a woman). I was so upset; I thought I was going crazy. And I thought the doctors thought I was going crazy. But what was happening was real, and it was awful. I tried changing my diet (which was already pretty good), and that didn’t help. I did force myself to exercise more, and that helped take my mind off things, which helped.

I believe that our bodies are connected in ways that no one truly understands. When women are pregnant, they experience things like nausea, vomiting, headaches, etc. So why not when we’re not pregnant? I was on Ocella for a year, and switched to Microgestin about 6 months ago. Both seemed to work just fine for my anxiety and other symptoms. Maybe trying a different pill could help you out. Think about it. But also know that these things will pass, eventually. You will feel better one day. It’s the getting through the bad days that sucks, though. :-)

Your doctor is the only one who can work with you to decide what additional medical assessments might be relevant.

This sounds similar to what I went through before I realized I had a caffeine allergy. I was drinking a lot of tea and iced tea. It didn’t show up on the EKG, because that shows the signal from the brain to beat, rather than the actual beating.

You feel faint not dizzy right? I mean, I know you probably feel dizzy, but are you actually lightheaded? Dizzy without lighthead or without that head rush feeling is usually an inner ear problem. That would mean the ENT would be the right specialist. Nausea is very common with inner ear problems and vertigo. But, the headache does indicate a neurologist might be a good next move. Have you had a head CT or MRI yet? A neurologist will not test you for inner ear problems. Does your dizzy feeling happen all of a sudden when you have not changed positions? I think I asked you this before, but I don’t remember the answer. Does it happen when you put your head back, or turn to your side in your bed, that sort of thing? Or, strike you suddenly without warning when you are just standing there?

I assume they tested your thyroid. I think you said they did.

It might be a virus, and they will never find that. If it is I believe it will get better.

I wouldn’t say it’s a dizzy problem. I just feel light headed. Movement doesn’t make it worse. Thank you

I hope they find an answer for you.