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serenityNOW's avatar

What do you know about myopathy?

Asked by serenityNOW (3631points) December 25th, 2013

Do you know anyone who has it, or do you have it yourself? Have any treatments worked for you, and or anyone you know? Just curious: I’d never heard of it, but apparently a dear friend of mine’s father just got diagnosed a couple of weeks ago, after falling down a lot. This man went from completely active (well, as active as a 69 year-old can get, which is about triple where I’m at.. lol) to needing a cane and not being able to walk up steps without a bannister. So, any feedback would be greatly appreciated…

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4 Answers

JLeslie's avatar

I know very little, hopefully some of our jelly doctors come to this Q. Myopathy can be congenital or acquired as far as I know. I always tell people with acquired muscle troubles to get their vitamin D checked (blood test). It has helped my muscle pain and weakness greatly to get my D back up above normal, it was very low. I didn’t have a diagnosis, but every little bit might help. If his D level is normal no harm done, if it is low why not treat it? I believe getting diagnosed with low D might have saved me or pushed off a serious neuromuscular disorder. My iron level in normal helps my muscle troubles a lot also.

I hope you friend’s dad can recover. Did the doctor say he has a possibility of remission or cure?

serenityNOW's avatar

@JLeslie – The remission question was one of the first things I asked. They literally seemed “uncertain.” I hope some of our doctors chime in as well, and I’ll mention the vitamin deficiency issue. I happy to hear the D staved off (or minimized) your issues; one can only hope that it’s something so simple that it could cause such a profound effect.

ETpro's avatar

I think myopathy just means any condition that causes excessive muscle weakness, as opposed to disorders of the nerves or skeletal system that cause difficulty with movement. I would think that the doctor making that diagnosis would then refer him to specialists who might be able to figure out what is causing a sudden onset of it. Any treatment plan suggested without knowing the cause is just taking a shot in the dark. I hope they can find out what’s up with him, and that it is treatable.

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