General Question

emilyrose's avatar

Has anyone treated or been treated for thyroid antibodies?

Asked by emilyrose (2263points) September 18th, 2008

I have long suspected that I had some thyroid issues based on family history and my symptoms that no doctor has been able to figure out. I recently tested positive for thyroid antibodies. My doctor (who is part of a practice that does like to bring in holistic/alternative medicine) said that it is controversial but that she is willing to talk through the options with me. I’d like to at least try to see if it makes a difference in the symptoms I am experiencing. Has anyone else treated a patient for this or been treated for it themselves? If I go for it, I would like to do as much alternative treatment as possible (i.e no synthetic hormones if I don’t have to) Just curious to hear any real life experiences.

Observing members: 0 Composing members: 0

17 Answers

kevbo's avatar

If you would, please post info or links for alt treatments. I’m a Hashimoto’s case myself and would be interested in alt treatment info. (I’ve only done Synthroid and denial.)

Also, Mary Shomon is a patient advocate type with a book or two about thyroid issues that you may find worthwhile.

shilolo's avatar

Are you hypothyroid as well, or did they simply detect the antibodies? The treatments vary depending on the underlying diagnosis. And, while I applaud you for wanting a holistic approach, endocrinology is not something I believe can be treated that way.

I understand you are in San Francisco (from prior discussions), so if you want suggestions for some outstanding endocrinologists, send me a PM and we can “chat”.

augustlan's avatar

As a teenager, I had Graves disease (over-active thyroid), went through Thyroid Storm, and came away from it all with Hashimoto’s (under-active). I might be of some help in discussing those issues, but in all the time I’ve had these problems, I’ve never even heard about thyroid antibodies. Does everyone with thyroid disease have them?

basp's avatar

not sure what thyroid antibodies are, but I have graves disease and went through the same as augustin described. Like someone stated earlier, since the thyroid is a part of the endocrine system, holistic medicine might not offer resolution.

emilyrose's avatar

I don’t know if the antibodies indicate hyper or hypo, but my symptoms are more hypo except that I am not low energy. But I WAS before I became an exercising maniac. I was very low energy and never wanted to do anything.

scamp's avatar

I have Hashimoto’s also. I’m goping to follow this thread to see what comes up here. My thyroid is deader than dead. A friend of mine lost his thyroid to cancer, and I take 4 times the amount of medicine he does, and still don’t feel any better.

Anyone here care to discuss what they take and how much for comparison?

clairedete's avatar

My mom had the radiation treatment to basically kill her thyroid. you take a pill that the nurse hands to you and quickly backs away. Other than the discomfort of taking the pill a nurse doesn’t even want to touch I think things went pretty well for her after that.

basp's avatar

scamp, I take the synthroid. My doc just wrote lab orders to have my blood checked as she thinks I maybe taking too low a level. The level I am at now is 150mcg. Don’t have any idea how that compares to others. I had the radiation too had to have it twice cause my thyroid just wouldn’t give up.

shilolo's avatar

My best guess is that emilyrose is talking about subclinical hypothyroidism. This is in fact, controversial in that a high TSH and normal T4 in a symptomatic patient with antibodies makes it seem like there is something that should be treated. The article I linked to has a suggestive algorithm for treatment (or not).

As for all of you that have had hyperthyroidism followed by radiation, followed by T4 treatment, your course is typical. It is completely empirical as to how much thyroid hormone each person needs. Some need a little, and some need megadoses.

augustlan's avatar

@shi: I never had the radiation, because I was only 15 when I got thyroid storm. My thyroid seems to have just “committed suicide”, all on it’s own.

@all: I used to take Synthroid, now take Levothyroxine (generic?) at a dose of 137 mcg. I have never felt the same once I got Hashimoto’s. It really sucks.

kevbo's avatar

225 mcg. Still get fatigued. Maddening at times.

scamp's avatar

@kevbo Me too! I take 225 of Levothyroxine. I used to take synthroid like augustlan , but Levothyroxine is the same thing, just a little cheaper. I still drag during the day. It sucks big time. I am waiting for the results of a lyme titre now, because of the aches and pains I have. I think it’s probably because of my thyroid tho.

Both my Mother and Grandmother had goiters removed, and I am in the process of ‘brewing” one now. We are checking it by ultrasound every couple of years to see how much it has grown. So far, it’s growing slowly, but I’m afraid one day I will have to get the permanent necklace… yikes!!

basp's avatar

has anyone had eye problems related to their thyroid?
I have been experiencing double vision, seepy eyes, and loss of peripherial vision.

scamp's avatar

I didn’t know thryoid could affect your eyes. I am experiencing eye pain right now, and I have a pea-sized “bump” under my lower eyelid. I don’t have double vision, but I have trouble focusing sometimes. I guess I should see a doctor about this, huh?

basp's avatar

scamp, my double vision started with trouble focusing and then got worse. From what I understand it has something to do with the muscles that move the eyeballs. And when both eyes don’t track at the same time, things go out of focus.
Maybe someone with a better medical understanding could explain it better.

shobhita's avatar

I read that if your hyper…. and due to medication become a hypo…you can then take medications to bring ur levels to normal… is dat true?

shobhita's avatar

well i think you should find some homeopathic medication for thyroid….since homeopathic never really has any side affects

Answer this question

Login

or

Join

to answer.

This question is in the General Section. Responses must be helpful and on-topic.

Your answer will be saved while you login or join.

Have a question? Ask Fluther!

What do you know more about?
or
Knowledge Networking @ Fluther