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DrasticDreamer's avatar

Do you have - or know anyone that has - endometriosis?

Asked by DrasticDreamer (23983points) January 6th, 2009

I found out today, as I’ve suspected for quite a while, that I do indeed have endometriosis. So I was wondering if there’s anyone out there who knows someone with it and if so, how it did or didn’t affect the woman’s ability to have children?

I’m not ready for kids, there’s still a lot I want to do, but I don’t want my ability to choose to be taken away, either. I’m freaked out and feeling pretty down. I just want to hear something positive, I guess.

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13 Answers

gailcalled's avatar

I had a friend who had a serious case. She and her husband adopted a little girl and shortly thereafter she got pregnant and had another lovely little girl. I know that is not very helpful, but I am simply reporting.

DrasticDreamer's avatar

It is helpful. Especially if she had a serious case… It calms my fears a little and I genuinely thank you for simply reporting. :)

AlfredaPrufrock's avatar

My friend was diagnosed at 25, and had her first of two children at 29.

augustlan's avatar

My friend had a bad case, too. She had surgery to remove the tissue, and had one child afterwards. Her problems returned after a miscarriage, and she decided she didn’t want to go through the whole thing again. She eventually opted for a hysterectomy. Good luck to you with your situation.

Tantigirl's avatar

I had surgery for it, my gynecologist burned out the tissue. I had the surgery 18 months after my daughter was born, I’ve had a son since then. My daughter is now 14 years old, and so far I haven’t had any further problems…

basp's avatar

I had endemetriosis when I was younger. It did not affect my ability to get pregnant or bear children.
Every case is different…. Consult your doctor.

bythebay's avatar

@Drastic: I’m sorry for your diagnosis, it’s really a pain in the ass. I have it, and was diagnosed at around 17. It did make for some pretty painful and disruptive menstrual cycles but was nothing more than annoying until I decided to have kids. In short, I had an exploratory surgery to check the damage and clear some tissue. I had another surgery a year later for basically the same thing. Then we controlled my cycles with medication and limited them to 4 a year. It took me awhile to conceive, but required no heroic measures. During my first c-section they cleared out a lot of tissue that had accumulated. Fast forward two years, another lap to clear some stuff out and then I conceived again. There are many medications out and even nasal sprays to help, however, the best advice I can give you is to seek out a sympathetic and progressive doctor who will work through this with you. Best of luck to you; and remember all cases are different so just be your own advocate. Feel free to PM me if I can help in any way.

DandyDear711's avatar

My mother had a bad case. It took them 7 years to have my brother and 4 to have me. They considered adoption but didn’t need to – who would want to after having me? My mother took DES when pregnant with me to “help maintain the pregnancy”. You can see the effects of DES on me though I haven’t gotten cancer – I did give birth to a beautiful daughter (now 19 YO) and adopted my second. (I highly recommend that arrangement!) I am 50 now so obviously much has changed in the medical world since then…

Don’t worry too much! Take Care!

Judi's avatar

I was a fertile Myrtle, but it got worse as I aged. I think birth control pills slow the growth and could possibly help maintain your fertility in the future. I have heard of many people taking the Depo shot who were never able to get pregnant again.

cak's avatar

@Judi, I haven’t seen that saying in a long time! (fertile Myrtle) :)

I didn’t develop it until after my first pregnancy – which resulted in miscarriage. I had surgery to burn the tissue and eventually got pregnant with my daughter. I did continue to have problems, but 9 years later had a son. Shortly after his birth, I had a hysterectomy. Truly, I had a few other complications, but I did have two children that are now almost 15 (she said she’s closer to 15 than 14, so I must refer to her as closer to 15) and a 5yr old.

Luckily, treatments have come a long way, other than the old treatment…“pregnancy” is the only treatment.

Good luck to you!

cooksalot's avatar

I have it, and there is just too much info to type about it. Just keep in mind that myth about having children will cure you of it. That’s just what it is at myth! That myth about not being able to have children that’s a myth too! It will all depend on the severity of your endometriosis, and even then when the doctors told me no hope boom! Now I have 2 count them 2 loud, rough and tumble, baseball playing, hockey puck hitting, music playing, BOYS! And I’m bad really bad I’ve had a ruptured ovarian cyst, and an operation where the doctor said he cleaned me up as best he could with out a hysterectomy. I guess there’s lots of scar tissue and endometriosis has even attached it’s self to my intestinal tract. Makes for the most miserable menstrual cycles ever, like almost as bad as labor, just not as bad a back labor. All I can say is Pamprin lots and lots of it!

casheroo's avatar

I have it, but was diagnosed after having my son. So, I don’t know if I had it before him or not…I was usually on the pill, which makes the symptoms pretty much disappear for me.
I would try not to worry, which is easier said than done..I know. I worry about my fertility also, since I am currently not gett periods most likely because of the endometriosis. But, I just try not to think about it.

kayleighxxxx's avatar

my mother has Endometriosis can i have it ???

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