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How does one go about looking for a doctor for an organ transplant?

Asked by Unbroken (10262 points ) January 19th, 2013

This is a personal need for me, not a curiosity.

After my latest flare up of my autoimmune hepatitis my doctor here said not only could he not help me, I am his second patient with this disorder, but that I needed to start developing a contact with transplant doctors, team. And he needed advice for how to treat me prior he was willing to conference with them. He did not have any recommendations or contacts. He said I had probably less then two years until the big date.

Said only that all major cities have transplant facilities and they all have to be good, so pick one with family or a support network nearby as I might not be able to work and may be waiting for months for an organ. Such a place doesn’t exist.

I have until the 31st of this month to find a doctor.

I thoink I have been handling everything emotionally alright. Even I think hypothetically knowing what will most likely kill me and knowing my end date will most likely be in my late 50’s or early 60’s. I can cash out my retirement early should I need it, and won’t have to worry about saving for old age and dieing a slow extended death or of alzheimer’s.

What I am struggling with is what criteria or how should I pick a doctor. I should stick with this doctor prior to during and after my medical procedure. That means a commitment and this is the person that I will put my life in the hands of. Which may just be business for the doctor, doing his/her job.

But I have always looked for the most qualified doctor in the past, even in town and yes that didn’t mean much here where essentially no one was qualified I only let myself believe that. Outside every one will be qualified.

So what qualifications or criteria should I or can I search for and how to quickly compile and filter my search?

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