Does anyone else on here have or know about Acute Intermittent Porphyria?
I am 99% sure that I have AIP. It’s pretty rare, it’s from a mutated gene and it’s got to do with hematin and electrolytes. I am researching all I can and talking to people on facebook who are very knowledgeable about this, but I want to know some personal stories too. Who goes through what and tell me everything, please?
This question is in the General Section. Responses must be helpful and on-topic.