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serenityNOW's avatar

What do you know about myopathy?

Asked by serenityNOW (3367 points ) December 25th, 2013

Do you know anyone who has it, or do you have it yourself? Have any treatments worked for you, and or anyone you know? Just curious: I’d never heard of it, but apparently a dear friend of mine’s father just got diagnosed a couple of weeks ago, after falling down a lot. This man went from completely active (well, as active as a 69 year-old can get, which is about triple where I’m at.. lol) to needing a cane and not being able to walk up steps without a bannister. So, any feedback would be greatly appreciated…

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4 Answers

JLeslie's avatar

I know very little, hopefully some of our jelly doctors come to this Q. Myopathy can be congenital or acquired as far as I know. I always tell people with acquired muscle troubles to get their vitamin D checked (blood test). It has helped my muscle pain and weakness greatly to get my D back up above normal, it was very low. I didn’t have a diagnosis, but every little bit might help. If his D level is normal no harm done, if it is low why not treat it? I believe getting diagnosed with low D might have saved me or pushed off a serious neuromuscular disorder. My iron level in normal helps my muscle troubles a lot also.

I hope you friend’s dad can recover. Did the doctor say he has a possibility of remission or cure?

serenityNOW's avatar

@JLeslie – The remission question was one of the first things I asked. They literally seemed “uncertain.” I hope some of our doctors chime in as well, and I’ll mention the vitamin deficiency issue. I happy to hear the D staved off (or minimized) your issues; one can only hope that it’s something so simple that it could cause such a profound effect.

ETpro's avatar

I think myopathy just means any condition that causes excessive muscle weakness, as opposed to disorders of the nerves or skeletal system that cause difficulty with movement. I would think that the doctor making that diagnosis would then refer him to specialists who might be able to figure out what is causing a sudden onset of it. Any treatment plan suggested without knowing the cause is just taking a shot in the dark. I hope they can find out what’s up with him, and that it is treatable.

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