How do I deal with other people's reaction to my diagnosis?

I’ve been going to the doctor for extreme weight gain and fatigue for years without a diagnosis or anything remotely helpful coming out of it. I have been frustrated that some doctors have offered nothing for help and just told me to deal with it and other doctors have offered treatments that did nothing.

I finally got an appointment with an endocrinologist. I really had some hope something would come of this. I haven’t gotten my blood test results yet, but he’s already telling me it’s likely to be “Chronic Fatigue Syndrome.” I am absolutely miserable about this. I’d rather be back in limbo than have this diagnosis.

Half the people in my family don’t even believe that chronic fatigue exists. I don’t even want to tell them this may be my diagnosis. I don’t want to hear “suck it up” or the like.

My husband reacted worse than if I told him I had cancer. He was silent for a long time and said that he didn’t want to take care of me. This shocked me. He was hoping the endocrinologist would diagnose something more tangible—like a tumor or an adrenal deficiency—so that I could take some pills or have surgery and get over it. He can’t deal with the fact that I have some vague nebulous description of a collection of symptoms instead of a real diagnosis. I’m really upset here and it’s compounded because he is acting as if the diagnosis was for him instead of me. He says he can’t offer me any support right now because he’s upset himself. He’s a freaking therapist. You’d think he’d have a clue of how to offer support for something like this.

Anyway, the diagnosis isn’t even official yet. I could get “lucky” and find out I have something “real” to satisfy everyone. I’m upset about this diagnosis, but I’m more upset about everyone’s reaction. They act like I got an official diagnosis of being just a lazy ass who says “chronic fatigue” as an excuse.