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msh's avatar

Help with choosing a care facility, anyone have any tips?

Asked by msh (4270points) January 15th, 2016 from iPhone

I am one half of a pair of siblings who are placed with the task of finding a full-time care facility for a third sibling. The type of dementia she has is Frontal Lobe. My sister was diagnosed in 2009. With help, she has been able to maintain herself and day to day activities since then. It is a horrid disease which, in this case, has had ups and downs, and changes over the years. The worst part has been when my sister, a once smart, pretty, accomplished and fun girl, has suddenly come back into herself to say how awful this whole thing has become. I have not seen that girl, though, in awhile.
I have been the primary care-giver, with my other sibling doing groceries when needed or urged, and financial bill-paying. Both of our names are on POA, financial interests, etc. I am the only POMA, as I have learned to watch over absolutely everything when I returned home to care for a parent until their passing. This all began at diagnosis during the same time.
Lately, things have become too much to handle, and her care needs shifted over to those who can deal with the increasing difficulties from this disease, without the attatchment of being the younger sister and ‘bad guy’. I am absolutely worn out, and need to step back from all of this. Not away, just back until the upcoming storm calms back down some.
My sister is physically healthy. At times with an amazing strength. We do not get physical, but it is coming. As with Alzheimer’s, the worse it gets, the more angry, contrary and physical the sufferer becomes. She would be appalled if she came back into herself as before. It breaks your heart while wearing you totally out. (A question here about working later shifts made me smile. I have been on 24/7 shift for way too long!)
I digress.
Does anyone have ideas of things to check for? I know that I will have to show up to check on her, unannounced and unscheduled, to get a fair reading of the place and her care.
I know about the high incidence of theft. Wandering, confusion, and combativeness from patients. With sticky fingers and the need to keep track of everything from the establishment.
What else?
Activities? Food?
Television Parking/ Babysitting?
I know if it smells bad- to leave and cross that off the list.
They will get all of her money, but my other sibling doesn’t understand that she will have her funds for upkeep, etc.,taken and that means for anything. Period. So I’ve got some clothes, effects, television- wall mounted, recliner- not cloth, and more, to buy.
Please help. I’m on my own on this one, and I’m putting my sister away until she dies. And it’s killing me too. I’m not a crier, but I am right now.
I keep envisioning her shuffling around in ratty old clothes and old slippers with her name wtitten in permanent marker on all. And glasses with duct tape holding them together….oh hell, perhaps that is me in the asylum after all of this! (Humor saves minds….)
Sorry for length. I gotta go check on everything again.
Any ideas? Please? I would be much obliged. Thank you.

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13 Answers

RedDeerGuy1's avatar

A friend was hired to keep my grandmother company. It cost $300 a month.
Most of my grandmas family died and she was alone at 92. Also make sure that your sibling gets to see a real doctor and nor a sports doctor. Also mental health pills should be issued by a psychiatrist and not just a GP. My grandma died alone and in pain and all the nurses could do is to get a sports doctor to give her an iv in her hip while she died.

stanleybmanly's avatar

Do you have the option to choose a state?

msh's avatar

State of Ohio. That’s were her retirement is through. She had some elsewhere but it it was transferred and added into her final retirement amount per month.
She isn’t 65 until August, so Medicare System won’t be available until then. That’s why the home-care stretch, but it’s gotten too hard. We thought about having someone in to help until August, but it would be too much for her, she’d have a really bad go of it. Then to turn around and put her in a safer place would be too hard on her. I really honestly believe that it would push her farther into this condition at a faster rate.

msh's avatar

@RedDeerGuy1 I am so very sorry about your Grandma. How things just get all messed up when it should be- or you want it to be so much easier. I’m sorry for bringing up sad memories for you. I apologize. :(

janbb's avatar

This will sound facetious but it’s not. When my cousin who is a geriatric social worker visited my Dad in his care facility, she was most impressed with the fact that they had carpeted halls. To her, that was an indication of a high level of care, i.e., the patients were not left to pee themselves.

Other than that, I would see how many RNs are on staff and on shift at any time, what the ratio of caregivers to patients are, what activities there are, where and what they eat. How accessible are doctors – most have visiting MDs. Spend a few hours and watch some activities, take a look in the dining room when they are eating and see how many helpers there are. Look at the rooms.

At the last place my Mom was in, they took the time to find out each patient’s profession or interests and encouraged that. My Mom loved birds and they brought bird books to her and took her out to the garden to sit.

It’s not easy – I wish you luck!

LuckyGuy's avatar

(((Hugs))) You have so much on your plate. Fortunately you are taking the advice offered by experts: ” Attend to your own oxygen mask before assisting others.”
You must do what is best for the total you. Yep! I said it! . If you crack, you can’t help anyone.
First, you need a place that is convenient for you! (Unless you don’t want it to be.)

@janbb gave good ideas for evaluating the facility.

I am a bit of a mental case so ignore the rest of my advice. I believe security is paramount and would spend time looking at the facility and how I could surreptitiously install my own cameras . Can I easily chain a trail camera to the wall or below the TV while secretly placing a nanny cam on the dresser and a stealth clock radio cam epoxied to the desk. (I would say nothing about the last two items and make the first one visible.)
The employees need to know you are involved and are a touch crazy.

Wherever you go, the tone has to be set from the get-go. Like the first minute of the first day of school the teacher must be in control of the class or she will spend the rest of the year trying to regain it. The staff must know you will be a forceful figure and fiercely protective of your sister.

Nature is so cruel. I wish you well.

Jeruba's avatar

@janbb they had carpeted halls. To her, that was an indication of a high level of care, i.e., the patients were not left to pee themselves.

That is a point to remember—something you’re not likely to think of unless you’re a pro in the field. Thanks, I’ll remember that.

If I were looking, I’d give a lot of weight to word-of-mouth recommendations. My mother-in-law was in a nice place, checked out by my sister-in-law, who’s a nurse. I’d probably start by looking for that kind of reference.

Also I’d be investigating home health aides, if that’s a possibility.

LuckyGuy's avatar

@Jeruba. A home health aide is a great idea! It gives @msh a much needed break.

janbb's avatar

It sounds like @msh os feeling that they are past that solution. There are decent nursing facilities if you can find and pay for them.

msh's avatar

Hop up to the third answer space. We can’t put her through the upset. The cost will also match that of having a caregiver in. So one change or two? Too hard on her.

Thank you for all of your help. It was kind of you to take the time.
The thing that strikes me as sad. The industry and care system really needs a redo. Boomers have fixed so much for the next generations, but this is one no one thinks to remedy until caught fast in the middle of it all. Perhaps later generations will catch on early and remedy this nessisary evil for most. Then again….

si3tech's avatar

@msh I saw an add called something like “A Place For Mom” and I believe it has free information to help you choose. Toll free? number 1–855-849–6825. For me it was my older brother with dementia. Fortunately he was a retired military and we had a domiciliary in Northern Montana. I worked in the health care field all my working years. As such I was so pleased to find they had an immaculate facility. No bad smells. Not a new facility at all but so clean. Hugs!

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